I have shared bit’s and pieces about my brain injury call Encephalitis I endured years ago and will, Lord willing, have it all in book form is some near future. But right now, I want to encourage you to sign a petition that will raise encephalitis awareness. This petition has been put together from the organization called Encephalitis Global. This organization I shared in a past post and how it was the best source for me ! (1*) I was no longer by myself being I finally found people who understood what I was going through along with reading much needed advice and information.
The president from Encephalitis Global describes it this way (parts from website)
“Once home from the hospital, encephalitis survivors and caregivers search for information and support. When they search the website of their local Brain Injury alliance, association, network or society they usually come up empty-handed!
Encephalitis can be an invisible disability as a survivor appears healthy but is struggling with serious neurological issues. Often, encephalitis survivors do not realize that many of the issues they struggle with following their acquired brain injury are parallel (if not identical in many cases) to the issues dealt with by survivors of all types of brain injury. If encephalitis could be recognized by every Brain Injury alliance, association, network and society in North America, survivors and their families would have an excellent local information resource.
Encephalitis is a genuine and serious brain injury. We ask that a link to Encephalitis Global be offered at the website of every Brain Injury alliance, association, network and society in North America. In this way, encephalitis survivors and caregivers would swiftly find information and support.
Please take a moment to sign our Petition to raise encephalitis awareness… Click here for Petition Information and please share it with others!!
In this way, encephalitis survivors and caregivers would swiftly find information and support.
On behalf of the people we help every day, we salute you and we thank you.
Encephalitis Global is an excellent starting point for people seeking further information resources on specific types of encephalitis.”
So please, if you have a few minutes, sign this petition. I know if this was available when I was hit with ‘E’ my husband and I could have gone down a much smoother road with valuable information, much needed support and . . .
… I wouldn’t have felt so alone.